I’ve been remarkably quiet. Mostly this is because I’ve been trying to put more of what energy I have into doing things IRL so I’ve been neglecting my internet presence: massively reduced tweeting, no LJ posts, not much ebay activity etc, facebook alone remains unaffected.
I have been feeling much more myself. I still get a lot of pain and most of the physical symptoms but there’s been a lot less Brain Fog recently which has meant I’ve felt more able to do things. Things that aren’t just being at either my house or F or S’s houses, it’s been exciting.
It does, however, mean that I’ve sort of fallen into the old pattern of doing too much and then feeling simply awful afterwards.
The gentle pacing of household chores has more or less been abandoned in favour of having fun: who wants to load the dishwasher when you could sit in the beer garden for an hour or two with lovely friends, the dishwasher can wait til tomorrow. Except that tomorrow I’m recovering from the beer garden trip so it doesn’t get done. Which is no good as it then becomes just one more thing that D has to do for me.
The upswing in this is that I’m much happier than I have been for a while but I’m struggling in most other ways.
My sleeping pattern has completely disintegrated as well. Lots of bouts of insomnia: there are few things more annoying than being exhausted and awake.
I had been feeling well enough to think about trying to go back to work for one 5 hour shift a week but after a recent flare and also thinking about just how physical my job actually is I’m now unsure. Which sucks as I miss it.
I’m trying to work out a way to balance everything but I appear to be generally rubbish at pacing.
Ah, yes, and I still haven’t heard back from the DWP after responding to their capability for work decision. Leaves me feeling like I’m in limbo in a lot of ways.
Will try update here more often, it is here so I can have a record of what helps and what doesn’t after all and I do need that at the moment!